This archive report was first published on 12 September 2021.
Breaking the Stigma: One Woman's Journey with Dermatomyositis ¶
Lucy Fungaro, a 21-year-old Ugandan student, has been living with dermatomyositis, a rare skin condition, for 16 years. She was diagnosed at the age of five and has since become a goodwill ambassador to end the stigma surrounding the condition.
Lucy's journey began in 2005 when she was diagnosed with dermatomyositis. The exact cause of the condition is not known, but it is believed to be autoimmune, with the body's immune system attacking its own tissue. For Lucy, the symptoms started as a rash on her cheeks, which then spread to her ears, and she also developed asthma and lung weakness.
Despite the challenges she faced, Lucy's parents never gave up on her. Her father, in particular, played a crucial role in her care, carrying her for long distances and never leaving her side. However, the stigma surrounding the condition was overwhelming, with people calling her names and saying mean things about her in school and on campus.
It was not until Lucy decided to share her story that she began to find support and understanding. She started a campaign to end the stigma surrounding dermatomyositis, using the hashtag #IamnotContagious. Her efforts paid off when she received responses from doctors who offered to help her find treatment.
After spending UGX350 million (Sh10.8 m) on treatment in Canada, Lucy's skin started to improve, and she had over 16 surgeries. She is now getting better every day and has even started a modeling career. Lucy's story is a testament to the power of courage and determination in the face of adversity.
