This archive report was first published on 10 September 2021.
Lucy Fungaro's story is one of resilience and determination. Diagnosed with dermatomyositis at just five years old, she has spent the past 16 years living with the condition.
As one of only two people diagnosed with dermatomyositis in Uganda, Lucy's journey has been marked by stigma and misunderstanding. However, she has refused to let her condition define her, and has instead become a powerful advocate for change.
Lucy's story began in 2005, when she was diagnosed with dermatomyositis. At the time, the doctors told her that she was the second case registered medically in the whole country. Despite the challenges she faced, Lucy's parents never gave up on her, and she credits them with helping her to cope with the stigma surrounding her condition.
As she grew older, Lucy began to realize the full extent of the stigma surrounding her condition. People would call her names, and say mean things about her in school. However, her mother's words of encouragement kept her going, and she eventually decided to take action.
Lucy became a goodwill ambassador to end the stigma surrounding dermatomyositis, using the hashtag #IamnotContagious to raise awareness and promote understanding. Her efforts have been successful, and she has become a role model for others living with the condition.
Lucy's journey has not been without its challenges. She has undergone 16 surgeries, and has spent millions of shillings on treatment. However, she remains determined to make a difference, and has even started a modeling career to help raise awareness about her condition.
As Lucy looks to the future, she is filled with hope and determination. She knows that she has a long way to go, but she is confident that she can make a difference. And as she says, 'I am not contagious, and I am not alone.'
